Patient Resources

American Limb Preservation Society
Patient Resources
It is important to learn about limb preservation and amputation care. These resources provide guidance for patients, caregivers, and family members. They are meant to help navigate limb salvage and limb loss associated with limb-threatening conditions. They are also meant for those at risk of limb loss, such as those with diabetes or vascular conditions. Prevention resources include guidance on how to limit your risk of limb loss. Treatment resources provide guidance immediately following an amputation and for the longer-term guidance related to limb loss. Support Group resources can help you find and engage with relevant organizations.

Education

i

Vascular Cures’ educational flyers

i

The American Heart Association’s article on circulatory issues:

i

The National Health Service’s amputation overview

Lifestyle Management

General

i

The Health Resources & Services Administration’s 5-step Lower Extremity Amputation Prevention (LEAP) guide

Nutrition

i

The American Heart Association’s overview of nutrition

Exercise

i

The Society for Vascular Surgery’s flyer on physical activity

Caring for yourself after surgery:

i

The Institute for Rehabilitation and Research’s guide to post-amputation rehab

i

The University of Michigan’s guide to care after lower limb amputation

i

Ability Tools’ emotional support resources

i

Amputee Coalition’s video on limb loss advocacy

i

For other information on amputation prevention and treatment, please consult the following resources. They are accurate and up to date

i

Amputee Coalition’s Caregiver Resource

i

Caregiver’s Library Resources

i

Amputee Coalition’s Resources

General tips for support groups:

\

After asking your provider, health center, or care team about support resources, try these places to find support groups or pages

  • Social Media
  • Mental Health America’s list of support resources
  • Meetup
  • Therapeer
\

Feel free to contact the organizer ahead of time to get an idea of what the virtual support group/resource is – ask if you can stay off camera or on mute, if you’re not totally comfortable at first. Many will allow you to participate at your level of comfort!

\

When using these support groups, be aware of potential medical misinformation and make sure to always check with your provider before making care-related decisions